The "wait and see" period progresses again as Joy waits to see how the Rutuxin will affect the sustainability of her red blood cells. She's finished her treatment with the drug and should know the results within a few weeks. Meanwhile, Joy continues to be a trooper as she gets her regular tranfusions and IVs and takes her many pills. In fact, she had a bit of a scare last week when the pharmacist gave her a double dose of one of her medications. This caused her kidneys to have problems and resulted in her being taken off other medications. Hopefully, being off the other medications will have no consequences. So far, so good!
At the same time, Joy, Ken, and the three oldests kids are thrilled that the doctors have cleared her to go to Disneyland next month with some family friends for a fun family vacation. Cheers!
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6 comments:
So this post reminded me of all those "What are you doing now that you've won the Super Bowl?" commercials where the victorious quarterback responds, "I'm going to Disneyland!"
Sorry that you're still having to wait for results and that you a kidney scare, but on the plus side, you get to go to Disneyland!
Hope it's a fun trip.
Love,
Steph
Great news...think of you often.
Lori
Yea Joy! Have fun in Disneyland.
So glad you will all be able to enjoy a vacation to Disneyland next month! We are sedning our best wishes during this "wait and see" time!
So exciting that you all get to go to Disneyland! What a treat after all you have been through :-). I also wanted to let you know that we're heading to Russia the 15th-22nd to meet our baby girl! She was born Jan of this year so she's only 10 months old, Emily is thrilled as are we! Talk to you soon and, again, SO HAPPY that you're doing so well.
Hugs!
Vicki
I'm so glad you hear you get to take a little vacation from it all and have some fun. Have a wonderful time. And best of luck with that medication. I think about your family all the time. We just found out last week we will be joining the ranks of those with twins. Crazy! If you have any tips you would like to pass on, feel free!! Hang in there!
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